Myositis Insights

Samantha Ruth Prabhu Shares Myositis Health Update

April 16, 2025 • Estimated Reading Time: 1 minute

Latest Research

Researchers have been exploring the use of tofacitinib to treat persistent rashes in juvenile dermatomyositis (JDM). Chen et al. (2025) While methotrexate effectively manages myositis activity, some patients still experience rashes. Tofacitinib shows promise in addressing these rashes, potentially enhancing patient outcomes by reducing or eliminating them.

This development is crucial for improving treatment options for JDM patients, as persistent rashes can significantly impact quality of life. The study suggests that tofacitinib might offer a solution for these patients, highlighting its potential as a valuable addition to treatment regimens Chen et al., 2025.

Clinical Trials

This is a list of upcoming or ongoing clinical trials that are actively recruiting and have been listed or updated in the last two weeks:

A Safety and Efficacy Study Evaluating CTX112 in Adult Subjects With Refractory Autoimmune Disease

RESET-Myositis: An Open-Label Study to Evaluate the Safety and Efficacy of CABA-201 in Subjects With Active Idiopathic Inflammatory Myopathy or Juvenile Idiopathic Inflammatory Myopathy

A Study to Understand How the Study Medicine Dazukibart Works in People With Idiopathic Inflammatory Myopathies

Environmental Risk Factors for the Anti-synthetase Syndrome

View the full list of clinical trials →

Community News

Myositis Support and UnderstandingApr 12, 2025

🎉 $5,493 raised by 98 amazing donors in our MSU 10-10-10 Campaign! 🎉

That’s nearly double what we had just last week — and with our generous matching donor, every dollar has become $10,986 in impact so far! 🙌💥

But we’re not done. Not even close.

We still have until April 30 to hit our $25,000 goal — and unlock a full $50,000 in support for people living with myositis.

And here’s the challenge:

👉 If you’ve already given — THANK YOU! Now ask 10 people who don’t know about myositis to give just $10.

👉 If you haven’t given yet — this is the moment to join us. You’ll make double the impact with one small gift.

Because here’s the truth:

💬 If we — the ones who know myositis, live with it, treat it, or love someone affected — don’t speak up and ask for support… who will?

Every donation helps fund:

💜 Emergency financial assistance for patients

🔬 Research for faster diagnoses and better treatments

📚 Education for patients, caregivers, and doctors

🤝 Advocacy and emotional support — so no one walks this path alone

You have the power to bring new people into the fight. Don’t underestimate what $10 and one personal ask can do.

✅ Give now: https://bit.ly/msu101010

✅ Then share it — with 10 people who would show up because you asked.

Let’s move this movement forward. Let’s not stop now. 💪💜

Myositis Moon WalkApr 14, 2025

Time is almost up! Spots are filling up and the deadline to register for The Patient Voice Workshop and the Myositis Moon Walk is tomorrow, April 15th. Visit www.myositismoonwalk.org for information, registration links, and a link to the swag store.

The Patient Voice Workshop:

The Myositis Moon Walk:

The Myositis AssociationApr 09, 2025

Save the Date! Join us on Tuesday, April 15, 2025, 12 PM ET | 9 AM PT for Congressional Outlook 2025: Medicare & Medicaid for the Myositis Community, hosted by TMA’s Women with IBM Affinity Group.

Hear from Shannon Wood, Director of Disability Policy, and Jori Houck, Manager of Advocacy Engagement, from the Muscular Dystrophy Association (MDA) as they discuss upcoming regulatory changes and their impact on Medicare and Medicaid. This webinar is open to all those living with myositis and their care partners.