Myositis Insights

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Latest Research

In a study by Kasser et al. (2025), researchers found that patients with myositis who had cardiac involvement at diagnosis were more likely to experience cardiovascular events (CVEs) than those without. The retrospective cohort study included 78 patients, with 15% showing cardiac involvement at the start. During follow-up, 19% of the patients had a CVE. Those with initial cardiac involvement had a 50% chance of a CVE compared to 14% for those without, a statistically significant difference (p=0.01). Moreover, the median time to a CVE was significantly shorter for patients with cardiac involvement, occurring in just 9 months compared to 84 months for others (p<0.01). The findings suggest that close monitoring is crucial for myositis patients with early signs of heart issues, especially in the first few months after diagnosis. This could potentially help in managing the risk of CVEs in this patient group.

Clinical Trials

Community News

Myositis UKMyositis UKMar 18, 2025

Today is World Young Rheumatic Diseases Day 🌎

Children & young adults have Myositis!

Children up to the of 18 can develop Juvenile Dermatomyositis (JDM) & rarely Juvenile Necrotising Autoimmune Myopathy.

Younger adults develop Dermatomyositis (DM), Necrotising Autoimmune Myopathy (NAM) & Polymyositis (PM). Myositis UK Trustee Jo Goode was diagnosed with Dermatomyositis aged 25.

More about: Juvenile Dermatomyositis (JDM) is a rare and complex autoimmune disease affecting children, causing inflammation of the muscles and a distinctive skin rash. Muscle weakness can make everyday activities difficult, but with early diagnosis and treatment, many children can lead active, fulfilling lives.

Common symptoms of JDM include:

- Muscle weakness, especially in the arms, legs, and neck

- Fatigue and difficulty climbing stairs or lifting objects

-A ‘heliotrope’ rash around the eyes or a red, scaly rash on knuckles, elbows, or knees

Joint pain or swelling

Early diagnosis and treatment are key to preventing long-term complications.

https://www.myositis.org.uk/myositis-info/conditions/juvenile-dermatomyositis/

World Young Rheumatic Diseases Day website https://wordday.org/

#wordday2025#jdm#myositis

Myositis UK Post
The Myositis AssociationThe Myositis AssociationMar 12, 2025

March is Autoimmune Disease Awareness Month. Each year, TMA partners with the Autoimmune Association and their National Coalition of Autoimmune Patient Groups (NCAPG) to increase understanding and awareness of autoimmune diseases.

Learn more: https://www.myositis.org/about-myositis/rare-disease-awareness/autoimmune-disease-awareness-month/

The Myositis Association Post
Myositis Support and UnderstandingMyositis Support and UnderstandingMar 16, 2025

🎉 IT’S HERE! The 10/10/10 Campaign is officially LIVE!

💙 $10 can make a difference for Myositis patients, and thanks to our $25,000 matching gift challenge, your donation will be DOUBLED!

🚀 Here’s how you can help:

✅ Celebrate MSU's 10th Anniversary with us!

✅ Check out our 10 REASONS here: https://bit.ly/msu101010

✅ Donate (at least) $10 in honor of someone or the cause!

✅ Tell 10 Friends → Challenge them to join the movement!

✅ Share this post → Let’s spread the word!

Together, we can amplify awareness, fund vital RIGHT NOW research, and provide support to those battling Myositis. Let’s make an impact—one $10 gift at a time! 💙

Donate to 10/10/10 here: https://bit.ly/msu101010

Myositis Support and Understanding Post

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