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Latest Research

In a study by Pillai et al. (2025), pain was found to be a common symptom in patients with myositis, with nearly half of the participants reporting moderate to severe pain. The research involved 50 subjects who were assessed at the start, after three months, and again at six months using various pain measurement tools and disease activity scales. The study revealed that pain levels were strongly correlated with disease activity, patient-reported outcomes, and functional measures at the beginning of the study. Moreover, improvements in pain were observed alongside reductions in disease activity over the six-month period.

The study also highlighted that pain assessments using the Short Form 36 survey questions were reliable. This suggests that managing disease activity in myositis could be key to alleviating pain for patients. The findings underscore the importance of pain as a significant factor in myositis, which is closely linked to the overall impact of the disease on patients' lives.

Community News

The Myositis AssociationThe Myositis AssociationFeb 04, 2025

For over 30 years, The Myositis Association has been dedicated to improving the lives of those affected by myositis. Through research, advocacy, and unwavering support, we continue our mission to drive awareness and fund innovative breakthroughs.

Become a FREE member of TMA today! https://www.myositis.org/join-tma/

Myositis UKMyositis UKFeb 01, 2025

It's Raynaud's Awareness Month that can be an additional symptom for those with Myositis.

Raynaud's causes your blood to stop flowing properly to your fingers and toes. When you're cold, anxious or stressed, your fingers and toes may change colour.

Find out more about symptoms and treatment here ➡️ www.nhs.uk/raynauds

Myositis UK Post
The Myositis AssociationThe Myositis AssociationFeb 05, 2025

Attending TMA’s International Annual Patient Conference is a life-changing experience for those living with myositis and their families, providing education, support, and a sense of community. This year for Rare Disease Week, February 24-28, our goal is to raise $5,000 to provide scholarships that allow more myositis patients and their families to attend this life-changing conference.

Your donation, no matter the size, helps bring hope and connection to patients who need it most. Join us in making a difference—give today and help us reach our goal.

https://www.myositis.org/scholarships/

Upcoming Events

FEB
06
Myositis Advocacy Leadership Series The Myositis Association • Columbia, MD    Online
FEB
11
Myositis Lung Disease Support Myositis Support and Understanding    Online
FEB
20
Monthly Myositis Meeting Myositis Women of Color    Online
FEB
28
Rare Disease Movement Challenge Myositis Support and Understanding    Online