Weekly Spotlight - 09.01.25

Latest News

Grandparent Council Uniting for Juvenile Myositis Awareness

The Grandparent Council unites grandparents of children with juvenile myositis. Through monthly calls and biennial meetings, they share experiences and knowledge. Their aim is to support families and advance research opportunities, fostering a brighter future for affected children. Connection and collaboration with other grandparents are emphasised.

COVID-19 Vaccination Linked to Increased Risk of Acute Transverse Myelitis

The study found a potential link between COVID-19 vaccines and increased risk of acute transverse myelitis (ATM). Evidence suggests a heightened ATM risk within 42 days post-vaccine, especially with certain vaccine types. Although findings highlight concerns, they underline the importance of continued vaccine safety monitoring.

Understanding Myofiber Force by Overcoming Fatigue

The study explored mice myofibers and found that fatigue impacts force and calcium levels. Yet, hope abounds as post-tetanic potentiation (PTP) can enhance force even during low-frequency force depression. This happens through increased calcium levels, showing myofibers can adapt positively, despite fatigue challenges.

Promising Growth in Rare Disease Treatments Offers New Hope for Myositis Patients

The idiopathic inflammatory myositis market is expected to grow by 2034 due to new therapies. Rising cases and improved diagnosis are making treatment advances crucial. Companies are actively developing therapies, widening treatment possibilities. Though challenges exist, the market shows promise, offering hope and support for patients and families.